Urgent funding plea for Aussie babies with rare disease

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Max was only three months old when doctors found a 3x2cm cancerous tumour in his neck. Instead of chemo, experts advised his parents to just wait. They're now calling for more investment in kids cancer research.

Max was diagnosed with neuroblastoma, a rare childhood cancer, and Dr Tallis and Dr van Dantzig were given a few different treatment options.

"There was a little bit of this new approach, of this watch-and-wait kind of approach — but there wasn't much literature about it, it was a very new way of treating this cancer." "I've done six months of oncology [rotation as a doctor] and I've never seen a cancer in an adult be treated like that or behave like that," Dr Tallis said.Luckily, Max's tumour shrunk — as some neuroblastomas do — and is now a third of the size it once was.

Considering how little research there was about neuroblastoma when faced with making the decision about Max's treatment, Dr Tallis said there was a clear need for more funding.

 

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