Sasha was a happy, healthy little girl. Now aged seven, she’s ‘trapped’ as a baby

From her first smile, her first word, her first step and her first birthday — doting parents Nadine and David Lipworth captured every moment of their “feisty” Sasha. But seemingly overnight, their little girl could no longer even utter the words “mummy” or “daddy”. The once-vibrant seven-year-old has lost her ability to talk, she is back in nappies and her fine motor skills have vanished. Sasha is essentially reversing in age. She will grow older, but, as she does so, her functions will regress.

“She stopped speaking: Just as she was beginning to find her voice, it was taken from her,” Nadine writes on the family’s GoFundMe page. “She was slipping away from us. The struggle to survive day-by-day took over our lives.” The worried parents put their lives on hold and threw themselves into a world of doctors’ appointments and tests as they desperately grappled for any answers.

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